This site "National PKU NEWS" is a wealth of information on PKU diets, research and tips compiled by Virginia Schuett, Director and editor of the National PKU Newsletter.
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To enhance and promote the quality of genetic services in the Southeastern Region which includes the states of Alabama, Florida, Georgia, Kentucky, Louisiana, Mississippi, North Carolina, South Carolina and Tennessee. |
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The Alliance of Genetic Support Groups is a non-profit organization dedicated to helping individuals and families who have genetic disorders. Our toll-free helpline is a resource for consumers and professionals who are looking for genetic support groups and genetic services. |
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The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy,research, and service.
National Society for PKU (British)
The NSPKU actively promotes the care and treatment of PKUs and works closely with medical professionals in the UK. It organises conferences and other throughout the UK, publishes a wide range of publications (including food lists) for parents, PKUs and medical professionals.
The PKU Organization of Wisconsin seeks to benefit PKU patients by promoting communication, encouraging education and advocating treatment appropriate to PKU. In pursuing it's goals The Organization resolves to utilize all resources obtained through charitable contributions from the community.