Joseph Miller Robinson

September 12, 1996 - April 4, 1998

Krabbe's Disease

Joseph's Story

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Joey has a baby sister! Click here to see her picture!

Joseph's Memorial - pictures of Joseph's gravestone which was finally placed (7/15/99)

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Joseph's Journey - an overview of Joseph's life, including therapies we tried.

Our Son Joseph - written by Joseph's Daddy. This was printed and placed in bulletins at Joseph's memorial services.

Joseph's Photo Album - a few of our favorite memories.

Physical, Speech and Aquatic Therapy - our experiences with Joseph.

Positioning Devices - some things we came up with to help make Joseph more comfortable.

When a Child Dies . . . - a new page on the grieving process. Information will be added as we figure things out.

And a little child will lead them . . . prints and notecards to benefit Hunter's Hope.

Friends - some beautiful children that we've met since learning the word Krabbe's.

For Fun . . . .

The Crabby Krabbe's Mom's page - all contributions to this page are from moms. Men are welcome to look at this page, but don't expect to understand it.

 

For medical information about Krabbe's Disease and links to other helpful sites, check out http://www.krabbe-disease.com

We'd love to hear from you! You can contact us at robmil@gte.net (Joseph's parents)

 This site has been visited times since March 1998.

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